Psalm 116:1 I love the lord because he hears and answers my prayers. This verse was given to Shawn by his sister & it is so fitting for Tuckers journey.
Last night was another sleepless night for mommy.Tucker once again wanted to be held all night, so that is exactly what he got. He heals when he sleeps! Mommy can sleep later. We had a good day today, and got some good news. Im just learning all this but i am going to try & explain this. So a white blood cell has 3 parts to it, lymphocites, monocytes & nuetrafils. Before the transplant Tuckers white blood cells , the few that he had were empty. So yesterday they told us he now has 2 nuetrafils that they can see, & we were very excited. This morning when the doctors came in they said not only does he have the nuetrafils but they also now see monocytes!! The transplant is working & Tuckers little body is doing its thing & starting to produce cells!!! We dont have a true count yet or any actual white blood cells yet, however they didnt expect to see anything at all till the end of next week. We have the most amazing baby ever!! After last week this was the most amazing news. We still have a ways to go , but we now know that things are happening and the sleepless nights just dont seem to matter. Every day as I sit here with Tucker it amazes me what his little body has to endure & he still wakes up & smiles at me. I am comforted in the fact that he wont remember all the pain is going thru just to be able to live.I know that God has big plans for our "Little Man"!!!!
I get to go home tomorrow for the weekend, till Monday , so I can be home for JT & Keighlys first day of school. I cant wait to sleep in my own bed, or just sleep for that matter. Tucker will be in good hands here with his daddy. I miss my other kids & i am excited to spend the weekend with them.
Please keep praying for Tucker!!!
Thursday, August 27, 2009
Wednesday, August 26, 2009
Wednesday August 26, 2009 Day+12 6:00pm
Tucker had a very cranky night last night. Mommy didnt sleep till 8:00 this am. He wanted to be held all night, so that is exactly what I did. He was quite cranky & restless all morning long & finally the nurse gave him adavan & that has seemed to work quite well. The good news to this is the reason he is probably cranky... He has counts today!!!! not much, but enough to make the Drs take notice. They say he may get really cranky , possibly get a fever, but that means the counts are coming up. Thats because his body isnt used to having those cells & it has to adjust, plus they go to work rite away, which causes discomfort at first. This is what we have been waiting for!!!!
Tuesday, August 25, 2009
Tuesday August 25, 2009 9:30am
Tucker is out of the PICU!!!!
Monday afternoon we were transfered back down to the regular transplant floor. Yea!! Tucker is doing really good. The drs are all happy w/ his progress. It is now day +11 of the transplant and we are back on course. Last week was a bit of a bump in the road, however it did not interfere w/ the engraftment (the transplant taking). The infection that he had has seemed to clear, his biggest issue right now is his poor little butt! It is so nasty raw, I feel horrible every time I change his diaper. They tell me it wont get better till he starts making cells, which wont be for bout another week yet. He was also put on high blood pressure medicine, but that is par for the course for transplant kids. All the antibiotics along w/ the pain & discomfort contribute to that.
Tucker is really becoming very aware of things now & doesnt like to be messed w/ a whole lot. He is pretty content to lay in his crib or bouncy seat, but he loves to be talked to, & he has a mobile that he loves to watch. This morning he has been full of smiles, which is so amazing to see!!!
This whole journey is definately way harder than I could ever imagined. Shawn left on Sunday night to go home so he can work all week & it is very lonely being here w/out anyone, just me & Tucker. I just keep telling myself its only for a short time. I have the weekend to look forward to also, I'm going to go home for the weekend to hang out w/ JT & Keighly, I miss them so much, & Shawn is going to come here.
Please keep praying for Tucker. I know that God is listening. Through all this I definately have a stronger faith than ever!!!
Monday afternoon we were transfered back down to the regular transplant floor. Yea!! Tucker is doing really good. The drs are all happy w/ his progress. It is now day +11 of the transplant and we are back on course. Last week was a bit of a bump in the road, however it did not interfere w/ the engraftment (the transplant taking). The infection that he had has seemed to clear, his biggest issue right now is his poor little butt! It is so nasty raw, I feel horrible every time I change his diaper. They tell me it wont get better till he starts making cells, which wont be for bout another week yet. He was also put on high blood pressure medicine, but that is par for the course for transplant kids. All the antibiotics along w/ the pain & discomfort contribute to that.
Tucker is really becoming very aware of things now & doesnt like to be messed w/ a whole lot. He is pretty content to lay in his crib or bouncy seat, but he loves to be talked to, & he has a mobile that he loves to watch. This morning he has been full of smiles, which is so amazing to see!!!
This whole journey is definately way harder than I could ever imagined. Shawn left on Sunday night to go home so he can work all week & it is very lonely being here w/out anyone, just me & Tucker. I just keep telling myself its only for a short time. I have the weekend to look forward to also, I'm going to go home for the weekend to hang out w/ JT & Keighly, I miss them so much, & Shawn is going to come here.
Please keep praying for Tucker. I know that God is listening. Through all this I definately have a stronger faith than ever!!!
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