Wednesday September 30,2009

We had a Drs appt at CHOP yesterday & we were very excited after the appt. Tucker had his bloodwork done & we were expecting him to need platlets. As I said before the platlets are the last thing to come back after transplant. Anything under 20 he would need them, normal is anywhere between 100-400. So his count last Thursday was 25 so I was thinking he would need them. The bloodwork came back & his platlets are at 65!!!! We were so excited, even the Dr was surprised. His little body is making them!! That means that he gets his central line out, which I am even more excited about!! We go back to Philly tomorrow to get the line out. He does have to be sedated for that, so please say extra prayers tonight, but i'm sure he will do just fine.
We have really settled into a good schedule & Tucker is doing so well being home. He is growing so big. At 3 months old he is now wearing 6-9mths clothes. He is rolling over, but he gets mad cause he gets stuck. His head is still a little weak, but getting stronger every day. He smiles all the time, & coos & makes wonderful little baby sounds. He is just a joy to have!!

Sunday September 27,2009

Today was such a relaxing day at home. Tucker loves being home!! We watched Nascar & the Steelers play ( even tho they lost). I am pretty sure that we have the happiest baby ever. He is so good.
We are really getting into a routine now. Tucker still has lots of meds he takes twice a day, & we have to care for his central line, & sometimes getting him to eat is still a bit of a chore. We also got great news on Friday. His Nurse Practioner called on Friday to tell us that his blood is now 99% donor, which is fantastic!!! Tucker has another appointment on Tuesday & hopefully he wont need platlets. Then they will consider taking out the central line. That will be such a relief. We still have quite a ways to go yet for him to be called "cured", but I do believe we are thru the worst, & now its up to his body to heel & us to keep him healthy.