Sleep for Shawn n I is few n far between!!
Tucker is doing good today. His biggest issue right now is his poor little butt! It is so raw, which is a common side affect of the chemo. They have him on morphine for the pain because when he goes to the bathroom he screams, its so sad. He received a drug today called immune globulin. It is given to "jump start" his immune system. A good day for Tucker!
Saturday, August 15, 2009
Friday, August 14, 2009
August 14, 2009 DAY 0 Transplant Day!! 8:00pm
The transplant happened at 4:32 today. It took all of 8 min. Amazing really!!! It was in a tube & the doctor just pushed it into his broviac line. It was his life saving moment!! We decided Tucker has 2 birthdays now. Now its a waiting game, his body has to do the rest. They will start taking his counts ahain at day +5. We wont really get excited or see much of anything though for 14 to 21 days. we do have a few more hurdles & worries to get thru. This next week we could see more of the side affects of the chemo, such as worse naseau, his hair falling out(what little is left), And possibly is poor little butt getting more sore. He is still on alot of medicines, & will be for awhile. Its incredible what such a little body can endure!!!
We are so blessed to have Tucker, & to have gotten the transplant today. I will never take life for granted ever again.
Please keep praying, god is definatley listening!!!!!!!!!
We are so blessed to have Tucker, & to have gotten the transplant today. I will never take life for granted ever again.
Please keep praying, god is definatley listening!!!!!!!!!
August 14, 2009 DAY 0 Transplant Day!!
Today at 3:30 is the big day!!! Transplant day!!
Shawn & I went to the beach for a few days w/ JT, Keighly & some other family. It was nice to get away & seeing the kids (I miss them). Nan (my mom) stayed w/ Tucker. He did great. He received the anti-rejection drug over the last 3 days. It could have caused some bad side effects, but w/ the help of prayer, & a really strong baby, he had NONE!! He does however have really bad diaper rash. They started him on morphine today for the pain, because diaper changes were horrible. He is much more comfortable now. We are just waiting now for the big moment!!
Shawn & I went to the beach for a few days w/ JT, Keighly & some other family. It was nice to get away & seeing the kids (I miss them). Nan (my mom) stayed w/ Tucker. He did great. He received the anti-rejection drug over the last 3 days. It could have caused some bad side effects, but w/ the help of prayer, & a really strong baby, he had NONE!! He does however have really bad diaper rash. They started him on morphine today for the pain, because diaper changes were horrible. He is much more comfortable now. We are just waiting now for the big moment!!
Tuesday, August 11, 2009
August 11,2009 Tuesday Day -3
Shawn & I are at the beach, but nan is there w/ Tucker. He is doing better than expected.He still has an appetite, but it is getting less. Tomorrow he starts the drug to prevent graft versus host disease. the drug has some bad side effects, so please pray extra hard for Tucker over the next couple days.
God is listening!!!
God is listening!!!
Monday, August 10, 2009
August 10,2009 Day -5 1:45pm
Day #2 of the second round of chemo (cytoxan). Tucker is definatly feeling the affects of the chemo. He is quite uncomfortable, & they have put him on adavan to help him sleep & be more comfortable. Amazingly he still has a good appetite.
Shawn & I are sneaking away for a few days to go down t the beach w/ JT & Keighly & some other family. Nan has come to be surrogate mom while we are gone. We are excited , but i'm feeling a little guilty. Hopefully he will behave for Nan.
Shawn & I are sneaking away for a few days to go down t the beach w/ JT & Keighly & some other family. Nan has come to be surrogate mom while we are gone. We are excited , but i'm feeling a little guilty. Hopefully he will behave for Nan.
Sunday, August 9, 2009
August 9, 2009 10:00pm Day -5
So we are coming to the end of the first day of the second round of chemo. It was a bit of a rough day. Tucker didnt sleep well last night , so we started off really tired. They put the catheter around 9am. I didnt like that at all!! They stated the chemo around 10am & about 20 mins into he started feeling yucky. Its so hard to see your child hurting! He has just not been feeling real good all day, & its so hard to hold him because hes hooked up to so much. He does however still have a good appetite so far, which the drs & nurses just cant believe. They are warning us that he will probably feel worse as the week goes on.
Tonight we went down to get something to eat at McDonalds, AGAIN! We are both gonna need to go on a diet after this. We met another mom that has a daughter in a room right by us. Her daughter has brain cancer & she is very sick. They arent sure if she will make it or not, but the mother is very hopeful. The kids & families here are so amazing! So the next time you pray for us, please pray for this family, they can definately use it.
Tonight we went down to get something to eat at McDonalds, AGAIN! We are both gonna need to go on a diet after this. We met another mom that has a daughter in a room right by us. Her daughter has brain cancer & she is very sick. They arent sure if she will make it or not, but the mother is very hopeful. The kids & families here are so amazing! So the next time you pray for us, please pray for this family, they can definately use it.
Subscribe to:
Posts (Atom)