Im sorry its been a few days since I have updated, but its been a very rough week to say the least!!!!
Its Saturday night & Tucker is doing much better, however his mommy & daddy are exhausted. The last 5 days seem like it was just 1 long day. So to update, Tucker was on the ventilator all day Monday & Tuesday, then Tuesday night they decided he was ready to come off of it. At 2am they took the breathing tube out & Tucker was having a really rough time breathing. He had alot of flem & mucas that he was unable to clear himself & he kept choking, so by 5am they had to put the tube back in. It is such a heartbreaking thing to not be able to help your child & see them in so much pain & discomfort. On Wednesday Keighly(Tuckers big sister), & Aunt Helen came to visit Tucker. It was very hard for Keighly to see her brother with all the tubes & wires. On Thursday Tucker still had the tube in but was breathing over the vent & by the afternoon the drs felt he was ready again for the tube to come out, so at 3pm they removed it again. It was very stressful couple of hours, but he did great, he was definately ready this time. Shawn & I stayed up all night holding him Thursday night & by Friday morning he was almost back to himself. He is doing fantastic now & they have weened him of the many, many additional meds they had to put him on to get him thru those few days he was on the vent. We had a pretty relaxing day with Tucker today. He is doing fantastic!! Hes back to smiling, & looking all around, all the extra fluid he was retaining is gone & we are ready to go back down to the regular transplant floor.
Thank you to everyone who is praying, we are comforted knowing there are so many people who care about Tucker & family. It is very difficult being away from home & family for so long, but we just have to remind ourselves that it really is a short time to save Tuckers life, & hopefully in a few months this will just be a memory.
Saturday, August 22, 2009
Tuesday, August 18, 2009
August 17,2009 Day +4 8:00pm
So its been a crazy couple of days to say the least!!! Where do I begin.......
Tucker went to sleep Sunday night & wasnt feeling very good at all. Shawn left to go home around 10pm. Tucker was on a morphine drip for his pain & was having alot of gagging episodes from the sores in his throat. His moniters kept going off thru the night, which alert the nurse if his breathin gets to shallow. So around 2:30 his alarm went off & I got up, I realized he wasnt breathin so well & called for the nurse & grabbed the oxygen. By the time the nurse came in he was ok & she thought mayb it was a false alarm, but within minutes it happened again. This time he wasnt hardly breathin at all & she called for an emergency. By this time I was so scared. Every nurse on the floor came running & they called the attending dr on call. So for about an hour the Drs & a few nurses were trying to figure out what was going on, during this time they had the oxygen mask on him, but he kept having small episodes where is breaths would get real shallow & they would have to stimulate him to breath. So around 5:00am we were all in the room & all of the sudden Tuckers breathing stopped all together! It was the scariest moment of my life! One that I wouldnt want anyone to experience. With no good way to describe what happened next, all hell broke loose!!! All the Drs & nurses went into immediate action, I was rushed out of the room. I called Shawn to tell him he needed to come right away. People were running all over & the attending Dr from the pediatric ICU came down(found out later he ran down 4 flights of steps to get to us cuz the elevators are to slow). I had no idea what was going on or even if Tucker was breathing, but I did know that he was in good hands & God & I had a little talk. Shawn apparently drove like a crazy man because he arrived in bout an hour & a half. Just as he got there we found out that Tucker was stable & had to be intabated( put on a ventilator) & was being taken up to the PICU. I felt like my world was just out of control at this point & I think Shawn did too. Things were happening very fast at this point. They took us upstairs to the PIcu where we sat outside of his room & watched a team of Drs & nurses work on our baby boy & we could do nothing but watch!!! Once they got him stable we were able to go in & see him. He was hooked up to so many things, it just was overwhelming.
Now they had to figure out WHY this happened. So as the day went on, they drew lots & lots of blood (so he had to have a blood transfusion & get platelets), & ran lots & lots of tests. There was many speculations by the team of Drs, from lung infection to thinking he just got tired. The lung x-ray came back clear, which was a relief. By this time it was looking like some sort of infection.
Tuesday morning tests started coming back & it is an infection in his blood. They arent sure exactly what strand of infection yet but they did say of all the things it could have been this was the best!! So probably between infection & the sores in his throat called mucisitis, his little body needed a break.
Tucker is doing much better today. His color is better & he is more relaxed. They have been decreasing the vent settings all day & he is doing most of the work now w/ just a little help from the vent. As i am writing this the doctor just came in & said they are hoping to take him off the vent tonight!! We are so excited. They have to do it slowly, but hopefully within a few hours he will be breathing on his own!!! Tucker is amazing!!
Please keep the prayers coming. I know God is listening & that he has big plans for our "little man" . We cant thank everyone & anyone enough that has been praying for Tucker. it has been a very rough couple of days for us. It is just so hard to see your child hurting so much, but knowing all this is happening to save his life!!
Tucker went to sleep Sunday night & wasnt feeling very good at all. Shawn left to go home around 10pm. Tucker was on a morphine drip for his pain & was having alot of gagging episodes from the sores in his throat. His moniters kept going off thru the night, which alert the nurse if his breathin gets to shallow. So around 2:30 his alarm went off & I got up, I realized he wasnt breathin so well & called for the nurse & grabbed the oxygen. By the time the nurse came in he was ok & she thought mayb it was a false alarm, but within minutes it happened again. This time he wasnt hardly breathin at all & she called for an emergency. By this time I was so scared. Every nurse on the floor came running & they called the attending dr on call. So for about an hour the Drs & a few nurses were trying to figure out what was going on, during this time they had the oxygen mask on him, but he kept having small episodes where is breaths would get real shallow & they would have to stimulate him to breath. So around 5:00am we were all in the room & all of the sudden Tuckers breathing stopped all together! It was the scariest moment of my life! One that I wouldnt want anyone to experience. With no good way to describe what happened next, all hell broke loose!!! All the Drs & nurses went into immediate action, I was rushed out of the room. I called Shawn to tell him he needed to come right away. People were running all over & the attending Dr from the pediatric ICU came down(found out later he ran down 4 flights of steps to get to us cuz the elevators are to slow). I had no idea what was going on or even if Tucker was breathing, but I did know that he was in good hands & God & I had a little talk. Shawn apparently drove like a crazy man because he arrived in bout an hour & a half. Just as he got there we found out that Tucker was stable & had to be intabated( put on a ventilator) & was being taken up to the PICU. I felt like my world was just out of control at this point & I think Shawn did too. Things were happening very fast at this point. They took us upstairs to the PIcu where we sat outside of his room & watched a team of Drs & nurses work on our baby boy & we could do nothing but watch!!! Once they got him stable we were able to go in & see him. He was hooked up to so many things, it just was overwhelming.
Now they had to figure out WHY this happened. So as the day went on, they drew lots & lots of blood (so he had to have a blood transfusion & get platelets), & ran lots & lots of tests. There was many speculations by the team of Drs, from lung infection to thinking he just got tired. The lung x-ray came back clear, which was a relief. By this time it was looking like some sort of infection.
Tuesday morning tests started coming back & it is an infection in his blood. They arent sure exactly what strand of infection yet but they did say of all the things it could have been this was the best!! So probably between infection & the sores in his throat called mucisitis, his little body needed a break.
Tucker is doing much better today. His color is better & he is more relaxed. They have been decreasing the vent settings all day & he is doing most of the work now w/ just a little help from the vent. As i am writing this the doctor just came in & said they are hoping to take him off the vent tonight!! We are so excited. They have to do it slowly, but hopefully within a few hours he will be breathing on his own!!! Tucker is amazing!!
Please keep the prayers coming. I know God is listening & that he has big plans for our "little man" . We cant thank everyone & anyone enough that has been praying for Tucker. it has been a very rough couple of days for us. It is just so hard to see your child hurting so much, but knowing all this is happening to save his life!!
Sunday, August 16, 2009
August 16, 2009 Day +2 5:30pm
Its a rough day for Tucker!
Last night Shawn & I were up most of the night. Tucker is very naseaous & he chokes & gags alot. Its a side affect from the chemo. The chemo not only kills the bad stuff but also the good. Its causing his GI tract to shed & he is developing sores in his throat & what they are calling "mucisitis". He is very flemmy. All those things combined are making him sick. It is also causing him to lose his appetite,(which was expected), so he is being hooked up to a nutrition IV now. He is also on a constant morphine drip now because the sores in his throat & his butt is still so raw. We were told that all these things would happen, & its all happening at once. Its very hard to see your child in so much pain & discomfort. I would do anything to take it away!!!
Please say extra prayers!!!
Last night Shawn & I were up most of the night. Tucker is very naseaous & he chokes & gags alot. Its a side affect from the chemo. The chemo not only kills the bad stuff but also the good. Its causing his GI tract to shed & he is developing sores in his throat & what they are calling "mucisitis". He is very flemmy. All those things combined are making him sick. It is also causing him to lose his appetite,(which was expected), so he is being hooked up to a nutrition IV now. He is also on a constant morphine drip now because the sores in his throat & his butt is still so raw. We were told that all these things would happen, & its all happening at once. Its very hard to see your child in so much pain & discomfort. I would do anything to take it away!!!
Please say extra prayers!!!
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